Famiglie SMA, founded in 2001 as an ONLUS has grown to become a reference point for families of children and adults with SMA, but also for scientific and medical researchers. An association of parents in the front line to combat a rare genetic disease, spinal muscular atrophy.It provides welcome and support for parents, assists children and aims to inform families about developments in scientific research, available therapies, available aids and assistance to which they are entitled by public institutions.


A united and determined group, synonymous with courage and love: an example to follow both in sport and in everyday life. Powerchair hockey is the unique sport which a person with SMA can play, so this association has chosen to fully support this sport and this event becoming our official sponsor!

THANK YOU FOR BEING PART OF SOMETHING #ASNEVERBEFORE

Discover their products and follow their mood.

www.famigliesma.org

 

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